Taking Credit: June 26, 2018 Migraine & Headache Awareness Month

Taking Credit: June 26, 2018 Migraine & Headache Awareness Month

7 Comments

  1. I personally have respected you for years, but this post comes off as condescending. Do I create my own content? Yes. Does it accomplish anything? Yes. Have I directed people to your challenges and content? Yes.

    As a content creator myself, I have always given credit where it is due. Newcomers and their own initiatives have their place as well, and they don’t necessarily have to be part of this one to make an impact.

    That doesn’t make them ‘noise.’

    I know the history. Teri and Tammy, you have been my advocate heroes for years. I still admire all you’ve done.

    Migraine is as different and as individual as we all are. If there is no one-size-fits-all migraine, why should advocacy be any different ?

    That our voices are heard is what matters.
    But my voice is my own. I won’t be dictacted to as to how I use it.

    1. Selena,
      We are truly sorry that it came off as condescending. In fact, we’re writing an entry to apologize and try to make amends.
      Thank you for your honesty,
      Teri

  2. Author

    This article was not intended to “take pot shots” at anyone nor was it written to disparage anyone. We know and work with many young, eager advocates with fresh ideas who are quite effective. It’s about knowing the history and building on it rather than trying to recreate what’s already been done. As for our definition of “noise” — it’s really quite simple. When we all speak with one voice, we are most effective. Some recent examples of effective advocacy include the letter writing campaign to ICER, Shades for Migraine, and the current outrage over Elle Magazine’s Instagram post. We are stronger and more effective when we all work together for the same goal. Our efforts (both new and old) become “noise” (i.e. counterproductive and distracting) when we engage in profanity, stigmatize each other, or purposefully take actions that are not in concert with current efforts. One example of “noise” is when advocates make a conscious choice to avoid joining in on nationwide efforts, such as National Migraine and Headache Awareness Month which has a specific theme each year. The most effective use of our efforts each June is to join the established activities and use the official theme and images. Use of themes or images from previous years or creating our own creates confusion, not a cohesive message.

  3. I am not quite sure what the point of this post this. The post leaves me feeling like you would prefer that us “new advocates” not participate unless we fit into your view of what advocacy is. I though we were an inclusive group, but obviously I was wrong, unless that isn’t how it was intended. If it wasn’t , maybe you should edit your post to be less condescending.

  4. Indeed I would like to know the answer to that question as well, how can advocacy be considered “noise”? Taking pot shots at the younger generation of advocates, is unfair and wrong. I see no set of rules in your piece, for cherished traditions of Migraine and Headache Advocacy. Times they do change and we need a dedicated, younger generation, with energy and love for advocacy, to carry on the torch. They should be encouraged, not put down! No one can remain top dog forever, who’s taking credit now?!

  5. I’m curious what types of advocacy are consider to be “noise.”

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